Calling Endometriosis Sufferers and Their Supporters

Hello Endosisters and their loved ones,

I am so glad you found my blog, and hope you find some useful information and comfort in hearing my story and reading the comments of other sufferers. Please feel free to introduce yourself.

Sheri xx

Thursday, August 25, 2011

Reflection of my visit to the Big Hospital

Today was a productive day,  I now have an appointment to see a Specialist who came highly recommended by my doctor,  I really felt listened to at the Big Hospital, more so than by my Local Hospital.  I truly felt like I was the only patient in the whole place and was given compassion, respect and results.  I will need more test than what I endured today before I am officially "fixed", but I am well on my way.  The surgery will involve removal of my ovaries, uterus, and cervix.  I will need a urologist to assess my bladder and possibly put a sling in to control my unpleasant bladder symptoms.  In addition to the surgery, I will need to take hormones for the next 12 years until I reach menopause.  (Hormone Replacement Therapy)

This process will not be behind me for a while, but I feel confident that when this is all over I will feel better.  If my Endo Suffering ends, my conviction to increase awareness will never end. This disease robs folks of their quality of life and ability to produce offspring.  There is no cure and minimal awareness. 

I am asked what Endometriosis is and how it feels when I mention the disease to loved one and acquaintances,  My experience with the monster consists of feeling like my insides are on fire, being stabbed by knives, and labor pains all combined into an ugly stew and served up daily.  Some days are less horrible than others but all days show constant reminder that this monster has taken up residence in my body.  Since my organs are attached to one another, the pain and discomfort and other symptoms are unbearable at times.  Being in pain makes every day tasks seem impossible.










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